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Sunday, November 4, 2012

Still awaiting discharge...

Last night, at our sugar check right before dinner, Jameson's sugar spiked up to 401. My heart stopped a little bit when I saw that number, and I asked the nurse if I should be freaking out. She said no. The transition period for a new diabetic, especially such a young one, is a delicate thing that takes time.

We fed him and gave him an appropriate dose of insulin to cover that high sugar plus the carbs that he ate.

At 9 pm, he was ok. But at midnight, he had dropped to 71. That number would be ok in an adult, but its too low for a one year old. We woke Jameson up and had him drink some juice. We learned yesterday that fruit juice is the fastest and easiest fruit carb to bring up sugar. He wasn't to thrilled about having to drink all four ounces, directly awoken from a deep sleep, and I had to kind of force the second half down him with a medicine dropper. But after he got over being mad, he went back to sleep and his sugar remained ok through the night.

Today was a pretty steady day. He ate fairly well, and is being a real trooper with all the finger sticks and injections. He doesn't really react to the finger sticks too much. He cries with the injections, but as soon as we are done, he stops.

I was feeling very confident with the dosage to give him. Then the doctor changed it up on me. Hopefully after tomorrow I'll feel better about it.

Some happy news is that his central line in his groin was removed this afternoon!! He's been off all iv's since this morning, and the only tubes left on him are the tubes from the arm iv. Those should disappear tomorrow.

We met with the dietician this afternoon as well. We obviously can't overload Jameson on sugar, which we wouldn't do anyway, but he really won't have a restricted diet. The important thing is that we know how many grams of carbs he eats/drinks, and we compensate for those with insulin. This is going to call for a lot of vigilance on Matt and I's part. The boys have sippy cups and drinks all the time. Gone are the days where they (well, just Hendrix, really) can just put down the sippy cup wherever he wants during play. From now on, cups have to stay up on the kitchen counter so that Jameson can't sneak drinks of hendrix's juice, or Gatorade, or whatever. Also, no more taking food off each other's plates. I ordered grapes for Jameson's lunch today, and Hendrix got excited because he wanted some. I couldn't let him have any, because then I wouldn't know how many Jameson had eaten, and wouldn't be able to accurately count the carbs. Lots of big changes for us and Hendrix!

So, a bit of insulin education for you. Jameson gets 2 kinds of insulin each day. Once a day he gets Levamir, which is a slow acting, 24-hour insulin. He has been getting that in the morning so far. He also gets Humalog with each meal.

Tonight, Dr. Horner (the endocrinologist) ordered Jameson a second dose of Levamir at bedtime, even though he already had it this morning. I raised my eyebrows at this, and so did the nurse, since he dipped so low last night. So she called and double checked with him, and he said to go ahead with it. We think that he wants to transition to a night time dose (which is typical), but it seems weird after last night's fluctuation.

So he had some Teddy Grahams and a tiny bit of pudding before bed, and we will test him at midnight, and again at 3, unless it needs done more often.

It may be a sleepless night, but I have a feeling there will be a few of those in the next few weeks and/or months!

I cannot complain about the situation. There are some other very serious cases on the PICU. I don't know the details, but one room requires masks and gloves to enter, one room constantly has people crying as they come out of it, and another has a tiny little girl with some kind of purple helmet with tubes coming out of it. There is a boy on this floor (I'm guessing age 7 or 8) who has been here since before we arrived, and I've seen his dad here less than 20 minutes the whole time. Not a sign of his mom.

I pray for these other families, and count my blessings.

Doctors and nurses have been hinting towards a discharge tomorrow. My fingers are crossed. I can't wait to sleep in my own bed and eat non-cafeteria food!

Thank you again for everyone's prayers and concern. We love you all!

1 comment:

  1. Good to here that things are getting better. There will be some big changes, but it is managable. The more organized you are the better, be diligent about your measurements. We live using digital scales, measuring cups and www.calorieking.com . We are praying for you and Matt, we know first hand the road your traveling, be assured it does get better. As parents of a teen with type 1 (kaylan has had it for about 4 years) if there is anything we can do or if you have any questions or need to talk, we are available.
    Nathan & Ajay Durham (from Joyce's church)

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