Wednesday, February 19, 2014

Jameson's Upper Endoscopy/Sigmoidoscopy

Yeah, I don't fully know what those things mean either.  I just know his intestines were biopsied to test him for celiac disease.
Type 1 Diabetes and Celiac Disease have a high correlation to each other, unfortunately.  His labs may come back negative for celiac, and that would be great.  But it doesn't mean he won't get it in the future.
But regardless, the tough morning (that turned out to be not that tough) is behind us!
As are most procedures requiring general anesthesia, this was a fasted one, meaning Jameson could have nothing to eat or drink after midnight.  That stinks for any young child, but especially a Type 1 Diabetic child. 
We recently got a CGM, which I don't think I ever posted about because life simply will. not. stop. for me.  But we did get a CGM which has been an awesome tool when the $80 sensor actually wants to stay attached to his skin, but I suppose that's another post for another day.
I was waking up periodically through the night last night keeping an eye on blood sugar, and he was pretty high all night, which isn't uncommon for him.  I gave him some insulin at 4 am, before I left for the gym, and when I got back at 6, he was still in the upper 200's, so I gave him a bit more.  That 2nd dose brought him down to around 135 and holding steady, and I felt good about that.
We got to the hospital, he was doing remarkably well for not being allowed anything to eat or drink, and got checked in and in his little hospital gown, and we were waiting for him to be taken back.  Then the good old CGM started vibrating and alarming, signaling that he was dropping at a fast rate.  Grr.  I kept an eye on him, and sat with him, trying to keep him entertained. 

He would not stop sticking his tongue out all morning!

During a space of about 10 minutes, I could see the hypoglycemia happening.  His expression changed and kind of became far away.  He got really whiny and said, "Momma, I'm whoa (low)." That was the first time he's ever felt the symptoms of a low, so this was very encouraging!

This is the face of low blood sugar, people.  Time for Glucagon.

 I checked him 4 times (because I kept getting different numbers), but he ended up being 68, which isn't even terrible, but does require attention.  The anesthesiologist came in to talk with us and I advised him of the situation, and he told me they'd be taking him back within minutes and would put dextrose in his IV.
Well, a half an hour later, I was furious.  I found out later than the anesthesiologist had to run up and do an emergency C-section, but it didn't change the lack of urgency I saw happening.  Low blood sugar is serious, people!!!  Any time I'm in a hospital or non-endocrinologist office, I'm amazed at how little people know about Type 1 Diabetes.  When I was administering the glucagon, I heard one nurse say to another, "Her son has low blood sugar, so she's giving him some insulin." *Facepalm*
Anyway -- fortunately, he was staying right around that 68 level, (I was checking constantly), but I flagged an RN over and asked him what the plan was, because I was told a 1/2 hour ago that they'd be taking him back within a few minutes.  He re-assured me again that they'd take him right back, but at that point, I mixed up the glucagon and gave him a mini-dose to bring him up a little bit and ensure he wouldn't drop any more. 
As luck would have it, they came in to take him to the room right after I gave him the glucagon, but hey - better safe than sorry!  I was allowed to walk with him to the procedure room.  We all stood there staring at the CGM for about 5 minutes (all of the nurses and doctors were fascinated by it), hoping for the blood sugar to keep rising, then the anesthesiologist suggested they just get started and give him a dextrose drip.  So I smooched him, turned on my boot heels, and walked out with a stone face.
Then I cried.
I cried for a few seconds when they took Hendrix to get tubes in his ears in 2010.  I was good to go with they took Jameson to get tubes in his ears in 2012.
But 2014 got the best of me.  I was worried sick about his blood sugar, and couldn't keep my emotions in check, darnit!  I texted my parents and my best friend, and let Matt know what was going on. 
Then, as quickly as they'd shooed me out the door, he was back, all knocked out cold on his bed!  The gastroenterologist said they'd gotten several good pictures and took quite a few biopsies, and they'll call me in a week.
Jamers didn't wake up right away.  I smooched his face, held his hand, and rubbed his head.  He finally came around, and immediately started pulling at his IV.  He wasn't about it.  So they took it out right away.  I got him sitting up and drinking juice. 

Both Hendrix and Jameson just cried and cried when coming off anesthetic when they both got their ear tubes, so I fully expected more of that.  But not a tear was shed!  He was confused and disoriented for about 3 or 4 minutes, then started jabbering away, being his crazy little self!  We were monitored for about 20 minutes, then got dressed and went home.

Looks like he's crying, but he was just trying to talk in his confused state!
He was such a rock star today.  Everyone kept commenting on how well-behaved and calm he was through everything.  I couldn't be more proud of him.
Now, we wait to see what the results are.  I will not be surprised if he is positive for celiac.  But I will be relieved if he's negative, of course.  At the same time, if he's negative, that leaves us without answers as to why his abdomen is always severely bloated, he has chronic diarrhea, and also chronic stomach cramps. 
We shall see.  But for today, we're glad the procedure is over and we move on with life and cross whatever bridge the diagnoses does or doesn't bring us to!
Have a good week, everyone!


  1. I've not had adhesive problems myself, but I've heard of a lot of CGM and pump users using Skin-Tac to help the CGM sensor stay on.

    1. I actually just purchased a bottle of the liquid SkinTac on Amazon this week! Thanks!

  2. I am an RN and haven't ever known someone who used the CGM. Fascinating! How challenging to have one so little with diabetes. God Bless you. And him!